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The fight over working hours for Direct Support Professionals (Updated)

Tuesday, May 27, 2025 - Posted by Rich Miller

* Senate Republicans last week…

Members of the Illinois Senate Republican Caucus are calling on Governor JB Pritzker to protect critical funding that provides care for adults with intellectual and developmental disabilities (IDD) in Illinois. In a letter sent today Republican Senators urged him to fully restore a proposed $32 million cut to Direct Support Professional (DSP) service hours in Community Integrated Living Arrangements (CILAs), where nearly 10,000 Illinois residents with IDD receive care.

“There will be lean years and there will be tight years, but every year – the state budget is a list of priorities. It is our duty as legislators to represent not just our constituents but all vulnerable Illinoisans who need our state’s help and protection,” the letter reads. “The IDD community has been pushed aside for far too long. This year you have the chance to prioritize them and make promised investments that help bring dignity and quality of life to these valued and vulnerable citizens.”

While the Governor’s proposed budget includes a 50-cent wage increase for DSPs, the Senate Republicans point out that the impact is undercut by the planned reduction of 900,000 service hours—the impact of which could eliminate an estimated 430 positions and result in a net loss of $32 million to the community-based care system.

The letter also highlights that thousands of Illinois residents remain on the state’s PUNS waiting list for services, and many more are living with aging caregivers who fear for their loved ones’ futures. Additionally, they argue that the proposed cuts would disproportionately impact downstate and rural areas, which already struggle to meet staffing needs and lack nearby facilities.

Senate Republicans say the proposed rollback threatens the state’s progress toward meeting federal requirements under the Ligas Decree and increases the risk of institutionalization for individuals with disabilities—a path many families have worked for decades to avoid.

The Senate Republican Caucus is urging the Governor to restore the full $32 million in service hours and recommit to building a fair, inclusive, and compassionate system of care for individuals with disabilities and their families.

* Pritzker’s spokesperson responded last week…

Governor Pritzker has made unprecedented investments and policy changes to support people with intellectual and developmental disabilities in Illinois — over $1 billion new dollars compared to FY ‘19. The Governor continues his prioritization of this population with a more than $100 million increase in the DHS DD division to support community services, including further wage increases for Direct Support Professionals (DSPs).

Rather than ever acknowledging Governor Pritzker’s historic improvements, Senate Republicans are proving past is prologue and refusing to stand up against a leader of their own party who has one goal: to make life worse for people who aren’t rich. If these members meant a single word they said in this letter, they would be hauling their sorry selves to Washington DC right now to urge the Senate to not cut healthcare, food benefits and countless other critical services Illinoisans rely on. They might have uttered one syllable of disagreement when Bruce Rauner was dismantling the human services infrastructure of Illinois.

This is yet another disappointing, albeit unsurprising, stunt from individuals who have not once put the people they represent above cheap, partisan nonsense.

* Shore Community Services took both parties to task in a press release. Excerpt…

At the state level, Governor Pritzker’s proposed budget includes modest increases to caregiver wages and reimbursement rates. However, this progress is negated by a simultaneous proposed cut to hours for direct support professionals (DSPs).

“Medicaid is the backbone of our disability service system in Illinois, and DSPs are the backbone of our organizations. Without these caring and professional individuals, people with IDD will lose critical support that enables them to live full and independent lives in the community,” said Erin Ryan, CEO of Shore Community Services.

Under the Governor’s proposed budget, there is a reduction of 1 million DSP service hours ($32 million), affecting more than 10,000 people who reside in Community Integrated Living Arrangements (CILAs). These cuts equal a direct loss of daily support for individuals to assist with transportation, daily living activities, and access to community resources.

At the federal level, House Republicans released a budget reconciliation bill plan which includes approximately $715 billion in cuts to Medicaid and the Affordable Care Act. These cuts could lead to up to 13.7 million Americans losing health insurance, according to estimates from the non-partisan Congressional Budget Office (CBO).

From Early Intervention for young children (ages birth to 3) to personal care services and community-based programming such as group homes and day programs, Medicaid is often the only payer of disability services, especially for the majority of disabled people who are very low-income. This foundational program has enabled millions to access therapies, equipment, housing, school-based health services, and more.

“Cuts to Medicaid and waiver-funded services will threaten health, independence, and quality of life for people with IDD,” Ryan said. “Every year we fight for more resources, and each victory underlines the commitment Illinois has made to end the segregation of people with IDD and invest in truly integrated community-based supports. We are concerned about what cuts could mean for our communities.”

* Capitol News Illinois last month…

Rep. Nabeela Syed, D-Palatine, asked IDHS whether DSP providers were consulted when deciding to reduce service hours in favor of higher wages. [IDHS Secretary Dulce Quintero] replied that providers were consulted during the Guidehouse study and that it “has been a very transparent process.”

However, providers in the They Deserve More coalition told Capitol News Illinois that they did not feel included in the decision-making process.

“I’ve been in every meeting, there’s not one that I missed,” Carmody said. “There was no consultation.”

A reduction in DSP service hours was first proposed in late 2023, but Carmody maintained there was an agreement that the current 28.5 million DSP hours would remain in place. She says the proposed budget cut amounting to 895,000 state-funded service hours came as a surprise.

“Why on earth would we have fought for over a year to stave off these cuts only to agree that it would only be a temporary measure? It’s preposterous. It’s counterintuitive,” said Carmody. “That was not the understanding. The understanding was that the community system would retain 28.5 million hours of DSP services.”

Carmody said some impacts on funding for DSPs were expected in future fiscal years, but not this year or to this extent. She also acknowledged the budgetary challenges of this fiscal year and said the current administration “hands-down” has done more than past administrations.

…Adding… From Senate Republican Leader John Curran’s Press Secretary Whitney Barnes…

Instead of engaging on the important issue of how to better serve vulnerable Illinoisans, Gov. Pritzker’s Administration responded (yet again) with hyper-partisan talking points and personal insults designed to mask the severity of the cuts the Governor has proposed to the developmentally disabled community in Illinois.

I can simplify the Senate Republicans’ request:

Will Governor Pritzker be moving forward with cutting over 900,000 hours for DSPs supporting Illinois citizens with intellectual and developmental disabilities, or will he consider the Senate Republicans’ request and fully reinstate the $32 million in his proposed wage cuts to help bring more dignity, care, and quality of life to these vulnerable and valued Illinoisans?

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Isabel’s afternoon roundup

Friday, May 23, 2025 - Posted by Isabel Miller

* Keeping up with the congressionals…

The two biggest names so far are State Representative La Shawn Ford and Chicago Alderman/Vice Mayor Walter Burnett.

Important to note that neither man has officially announced a campaign yet, so if Davis does decide to run for re-election, they almost certainly wouldn’t run.

— Uncrewed (@Uncrewed) May 23, 2025

* Click here for some background on the bill. Ben & Jerry’s launched a small Meta ad campaign this week for the FAIR Act…

The bill passed through the House in April but has yet to move in the Senate.

* Be safe out there folks…

We had a little excitement this morning, but everyone is safe and the museum is open.

A driver apparently lost control of his car while passing by the museum this morning and hit the rear of the building. The car caught fire, but we understand no one was seriously injured. pic.twitter.com/nAIetvOtBH

— Lincoln Presidential Library (@ALPLM) May 23, 2025

…Adding… Sen. Meg Loughran-Cappel’s father Edward Loughran has passed away. Click here to read his obituary.

*** Statewide ***

* NWI Times | Around 30 lawsuits filed against Indiana, Illinois cremation services over mishandled, misidentified remains: The Indianapolis-based law firm CohenMalad, Chicago-based attorney Scott Yonover and the Chicago-based law firm Costello, Gilbreth & Murphy have filed 28 lawsuits in Indiana alleging negligence and the mishandling of human remains, and plan to file “dozens more” in coming days. They also additionally plan to file “numerous” lawsuits in Illinois on behalf of family members who say their loved ones’ remains were mishandled, that their loved ones’ ashes were co-mingled with other people’s, and that they were sent the wrong remains.

* Daily Herald | ‘Anything to raise awareness’: Drivers asked to watch for turtles crossing roads: Unlike squirrels or deer that dart out of the woods and can startle drivers, turtles aren’t going to surprise anyone and can’t take evasive maneuvers to avoid being struck. That’s why wildlife experts are reminding drivers to be alert for the slow-moving reptiles crossing roads near lakes, ponds and marshes throughout the region searching for water, food and mates. “This time of the year is probably the highest concentration of road mortality or encounters,” said Dan Thompson, ecologist for the Forest Preserve District of DuPage County.

*** Statehouse News ***

* WTTW | Deadline Approaching for Illinois Lawmakers to Secure Transit Funding and Reform Bill: “In order to realize the savings of 20%, you’d have to cut service by up to 40%,” said Orlando Rojas, a Metra train conductor and legislative representative at Sheet Metal Air Rail Transportation (SMART) Union Local 653. “There’s certain fixed costs that the transit agencies have. Whether it’s fully funded or not, they’re obligated to meet those costs. So where they have the most room is in service cuts, unfortunately, and that’s the actual service that we provide. Now you’re talking a 40% reduction. Obviously, the people that I work with are concerned about cuts.”

* Chicago Eater | Illinois Third-Party Reservation Ban Bill Awaits Gov. Pritzker’s Approval: The Restaurant Reservation Anti-Piracy Act was unanimously passed with 58 votes on Thursday, May 22. The Illinois bill is modeled after a New York policy signed into law in December. The measure seemingly targets Appointment Trader, a website where users sell reservations to trendy restaurants. Lawmakers contend users deploy bots on sites like OpenTable and Resy to scoop up desirable times before customers can book tables. Illinois State Rep. Margaret Croke says the difficulty in finding reservations at restaurants like Armitage Alehouse led her to introduce the legislation in February in Springfield.

*** Downstate ***

* WGLT | CIRA taxis down $70 million capital projects runway: The Central Illinois Regional Airport has about $70 million in infrastructure projects underway, or in a six-year pipeline. Some are moving faster than others. A road project at CIRA has hit a snag. Airport executive director Carl Olson said a proposed cargo access road has lost about $1.5 million in federal funding. The road would divert heavy truck traffic from the main airport road used by passenger traffic, increasing safety and reducing road wear. Olson said design work for an intersection is done.

* Telegraph | Judge denies protection order for Madison County board member after social media dispute: A hostile response to a social media post by Madison County Board member Alison Lamothe led to a court hearing Thursday, where Associate Judge John Hackett denied Lamothe’s request for an order of protection. On May 7, Madison County Board member and Edwardsville resident Alison Lamothe filed a petition for a stalking/no contact order against Russell Wheat of Roxana. Wheat previously received attention for his battles with the Roxana Landfill.

* WICA | Potential legal action: Rantoul officials upset with landlords following large fire at former Air Force base: Charred piles of mattresses, burned brick and busted windows are what’s left of a vacant building on the former Chanute Air Force Base in Rantoul following a fire on Tuesday. Some village officials are upset with landlords for their lack of action and communication. Now, Rantoul leaders are taking legal action. Fire Chief Chad Smith and Mayor Sam Hall feel the recent fire could have been prevented if the owners had taken care of the property.

* IPM News | Danville says goodbye to Bresee Tower: The demolition of the 12-story downtown office building began in early May. With no explosives involved in the process, city officials say it could take months for a demolition crew to remove the long-vacant building. In its first few days on the job, a demolition crew focused on Bresee Tower’s north side, tearing down the fire escape, and punching through walls.

* PJ Star | Major courthouse renovations will change the look of this Downtown Peoria block: Capped at $6.76 million in construction costs, the Courthouse Plaza and surrounding block will undergo an aesthetic upgrade that will include “new permeable pavers, water jets, lighting, electrical and irrigation systems, vehicle protection bollards, benches, picnic tables, and landscaping,” according to a news release.

*** Chicago ***

* Sun-Times | Chicago restaurateurs push for repeal of law raising tipped wages; supporters want to expand it statewide: Lopez acknowledged getting the 26 City Council votes needed to repeal the ordinance will likely be an uphill climb. “I’ve had one or two individuals mention [a repeal] to me anecdotally but nothing in terms of a serious effort, which is problematic if it’s going to be successful,” he said.

* WTTW | Jussie Smollett Agrees to Make $50K Charitable Donation to Resolve City of Chicago Lawsuit: On Thursday, the city announced the case will be dismissed in exchange for Smollett making a charitable contribution of $50,000 to BBF Building Brighter Futures Center for the Arts, a local organization that provides community, health and education opportunities for Chicago’s underprivileged youth.

* WGN | ‘In crisis mode’: CACC warns of pet drop-offs as daily line keeps getting longer: The shelter is averaging in May around 56 animals being surrendered per day, up from 54 in April. Some are strays, but many are owners giving up their pets. […] “Most of it is the economy — the cost of pet food, vet appointments, other stuff,” Tejeda said. “A lot of people truly love their pets but they just don’t know about all of the resources out there.”

* Sun-Times | No charges for shooter in Roseland double homicide sparked by argument over cheese: The shooting was sparked by an argument over what kind of cheese was being put on a customer’s sandwich at Momty’s Grill, located at 9 East 111th St., on Monday afternoon, according to a Chicago police report. An employee, Lois Wheeler, became upset with the customer, who was yelling at her about the cheese, the Chicago police report said. Wheeler called her son, Tate Wheeler, to the restaurant.

*** Cook County and Suburbs ***

* Daily Herald | Naperville mayor touts Block 59 dining district, calls I-88 corridor the ‘most significant redevelopment opportunity’ in city history: A new study calls the corridor the only “opportunity area” of its scale left in the city. Much of the corridor in Naperville — once known as its “Innovation Corridor” — was developed with single-use, low-density office space and is underused and “underperforming relative to its potential,” according to the report by AECOM, a consultant hired by the Naperville Development Partnership.

* Daily Southtown | Substitute teacher charged with assault of student at Country Club Hills school: Officers took a statement from Lavana McEwen, who said that earlier that day, her son had been chased and battered by a school staff member, police said. […] Moore is scheduled to appear in court at 9 a.m. on June 3, according to court records. […] Parents and students said a substitute teacher chased, choked and hit a student after becoming angry in a fourth grade classroom at Meadowview. Another student was injured when the teacher allegedly pushed and overturned classroom furniture, leaving the child pinned in a corner, according to parents.

* Crain’s | A year ago, Oberweis Dairy was in bankruptcy. Now it’s launching an expansion: Five to seven new stores are set to open in the Chicago area — Oberweis’ largest market — and five in St. Louis, where the company already operates four stores. Oberweis is also targeting an “aggressive expansion” into Southwest Florida, where it plans to open five stores. “We know that (Florida has) a rich history of Midwest-rooted people that live there, whether it’s from Chicago, St. Louis, Wisconsin — all markets we serve, where they’re familiar with the Oberweis brand,” Hoffmann said. “We want to capitalize on all that brand recognition.”

*** National ***

* Courthouse News Service | Florida judge rules AI chatbots not protected by First Amendment: But in her order, U.S. District Court Judge Anne Conway said the company’s “large language models” — an artificial intelligence system designed to understand human language — are not speech. “Defendants fail to articulate why words strung together by an LLM are speech,” she wrote. “By failing to advance their analogies, defendants miss the operative question. This court’s decision as to the First Amendment protections Character A.I. receives, if any, does not turn on whether Character A.I. is similar to other mediums that have received First Amendment protections; rather, the decision turns on how Character A.I. is similar to the other mediums. The court is not prepared to hold that Character A.I.’s output is speech.”

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