* Senate Republicans last week…

Members of the Illinois Senate Republican Caucus are calling on Governor JB Pritzker to protect critical funding that provides care for adults with intellectual and developmental disabilities (IDD) in Illinois. In a letter sent today Republican Senators urged him to fully restore a proposed $32 million cut to Direct Support Professional (DSP) service hours in Community Integrated Living Arrangements (CILAs), where nearly 10,000 Illinois residents with IDD receive care.

“There will be lean years and there will be tight years, but every year – the state budget is a list of priorities. It is our duty as legislators to represent not just our constituents but all vulnerable Illinoisans who need our state’s help and protection,” the letter reads. “The IDD community has been pushed aside for far too long. This year you have the chance to prioritize them and make promised investments that help bring dignity and quality of life to these valued and vulnerable citizens.”

While the Governor’s proposed budget includes a 50-cent wage increase for DSPs, the Senate Republicans point out that the impact is undercut by the planned reduction of 900,000 service hours—the impact of which could eliminate an estimated 430 positions and result in a net loss of $32 million to the community-based care system.

The letter also highlights that thousands of Illinois residents remain on the state’s PUNS waiting list for services, and many more are living with aging caregivers who fear for their loved ones’ futures. Additionally, they argue that the proposed cuts would disproportionately impact downstate and rural areas, which already struggle to meet staffing needs and lack nearby facilities.

Senate Republicans say the proposed rollback threatens the state’s progress toward meeting federal requirements under the Ligas Decree and increases the risk of institutionalization for individuals with disabilities—a path many families have worked for decades to avoid.

The Senate Republican Caucus is urging the Governor to restore the full $32 million in service hours and recommit to building a fair, inclusive, and compassionate system of care for individuals with disabilities and their families.

* Pritzker’s spokesperson responded last week…

Governor Pritzker has made unprecedented investments and policy changes to support people with intellectual and developmental disabilities in Illinois — over $1 billion new dollars compared to FY ‘19. The Governor continues his prioritization of this population with a more than $100 million increase in the DHS DD division to support community services, including further wage increases for Direct Support Professionals (DSPs).

Rather than ever acknowledging Governor Pritzker’s historic improvements, Senate Republicans are proving past is prologue and refusing to stand up against a leader of their own party who has one goal: to make life worse for people who aren’t rich. If these members meant a single word they said in this letter, they would be hauling their sorry selves to Washington DC right now to urge the Senate to not cut healthcare, food benefits and countless other critical services Illinoisans rely on. They might have uttered one syllable of disagreement when Bruce Rauner was dismantling the human services infrastructure of Illinois.

This is yet another disappointing, albeit unsurprising, stunt from individuals who have not once put the people they represent above cheap, partisan nonsense.

* Shore Community Services took both parties to task in a press release. Excerpt…

At the state level, Governor Pritzker’s proposed budget includes modest increases to caregiver wages and reimbursement rates. However, this progress is negated by a simultaneous proposed cut to hours for direct support professionals (DSPs).

“Medicaid is the backbone of our disability service system in Illinois, and DSPs are the backbone of our organizations. Without these caring and professional individuals, people with IDD will lose critical support that enables them to live full and independent lives in the community,” said Erin Ryan, CEO of Shore Community Services.

Under the Governor’s proposed budget, there is a reduction of 1 million DSP service hours ($32 million), affecting more than 10,000 people who reside in Community Integrated Living Arrangements (CILAs). These cuts equal a direct loss of daily support for individuals to assist with transportation, daily living activities, and access to community resources.

At the federal level, House Republicans released a budget reconciliation bill plan which includes approximately $715 billion in cuts to Medicaid and the Affordable Care Act. These cuts could lead to up to 13.7 million Americans losing health insurance, according to estimates from the non-partisan Congressional Budget Office (CBO).

From Early Intervention for young children (ages birth to 3) to personal care services and community-based programming such as group homes and day programs, Medicaid is often the only payer of disability services, especially for the majority of disabled people who are very low-income. This foundational program has enabled millions to access therapies, equipment, housing, school-based health services, and more.

“Cuts to Medicaid and waiver-funded services will threaten health, independence, and quality of life for people with IDD,” Ryan said. “Every year we fight for more resources, and each victory underlines the commitment Illinois has made to end the segregation of people with IDD and invest in truly integrated community-based supports. We are concerned about what cuts could mean for our communities.”

* Capitol News Illinois last month…

Rep. Nabeela Syed, D-Palatine, asked IDHS whether DSP providers were consulted when deciding to reduce service hours in favor of higher wages. [IDHS Secretary Dulce Quintero] replied that providers were consulted during the Guidehouse study and that it “has been a very transparent process.”

However, providers in the They Deserve More coalition told Capitol News Illinois that they did not feel included in the decision-making process.

“I’ve been in every meeting, there’s not one that I missed,” Carmody said. “There was no consultation.”

A reduction in DSP service hours was first proposed in late 2023, but Carmody maintained there was an agreement that the current 28.5 million DSP hours would remain in place. She says the proposed budget cut amounting to 895,000 state-funded service hours came as a surprise.

“Why on earth would we have fought for over a year to stave off these cuts only to agree that it would only be a temporary measure? It’s preposterous. It’s counterintuitive,” said Carmody. “That was not the understanding. The understanding was that the community system would retain 28.5 million hours of DSP services.”

Carmody said some impacts on funding for DSPs were expected in future fiscal years, but not this year or to this extent. She also acknowledged the budgetary challenges of this fiscal year and said the current administration “hands-down” has done more than past administrations.

…Adding… From Senate Republican Leader John Curran’s Press Secretary Whitney Barnes…

Instead of engaging on the important issue of how to better serve vulnerable Illinoisans, Gov. Pritzker’s Administration responded (yet again) with hyper-partisan talking points and personal insults designed to mask the severity of the cuts the Governor has proposed to the developmentally disabled community in Illinois.

I can simplify the Senate Republicans’ request:

Will Governor Pritzker be moving forward with cutting over 900,000 hours for DSPs supporting Illinois citizens with intellectual and developmental disabilities, or will he consider the Senate Republicans’ request and fully reinstate the $32 million in his proposed wage cuts to help bring more dignity, care, and quality of life to these vulnerable and valued Illinoisans?